There is no cure for Romano Ward Syndrome, but there are medications that can help manage the symptoms.
- Romano Ward syndrome is a disease that causes patients to experience muscle weakness and pain in their legs and arms.
- Patients also report feeling as though their legs are heavier than normal, or that they cannot move them as quickly as they would like to.
- These symptoms can be debilitating, and often make it difficult for patients to perform daily tasks such as walking or climbing stairs.
- Romano Ward Syndrome is a rare genetic disorder that affects only 1 in 100,000 people.
- It causes lifelong problems with mobility and motor skills, and it's often associated with autism spectrum disorders.
- The condition typically presents itself in early childhood, when parents notice their child struggling to move or speak properly.
- The child may have trouble learning how to walk or talk, or may have difficulty using their hands in certain ways (such as writing).
The most common symptoms include:
-difficulty speaking clearly or at all
-difficulty swallowing food without choking
-a high-pitched voice that can sound like a squeak or a squeal
-difficulty walking due to weak muscles in their legs or feet
-difficulty controlling bodily movements such as blinking or smiling
-unusual facial expressions such as grimacing or not showing emotions appropriately
Painless injury or infection,Unable to feel pain during physical activity,Unable to feel pain when eating hot or cold foods,Tenderness in muscles due to exercise or strain without an injury being present (this is known as muscle tenderness)
Head injury,Brain tumor,Multiple sclerosis
Beta blockers such as metoprolol (Lopressor, Toprol-XL), propranolol (Inderal, Innopran XL) or atenolol (Tenormin)